Endocrine Abstracts

Background: Recent research on experiences of adults with a rare endocrine condition/disease (RED) indicate a preference for greater access to allied health professionals including physiotherapists.Objective: To explore experiences of musculoskeletal (MSK) symptoms (typically managed by physiotherapy) of adults living with a RED and investigate their reported usage and satisfaction of MSK physiotherapy services.Method: Ethically ap...

Background: Neuroendocrine tumours (NETs) are heterogeneous cancers with varied survival, arising mainly from the gastroenteropancreatic tract. Delayed diagnosis and mislabelling are widely recognised internationally in midgut NETs with little data describing how to improve diagnosis times. In 2017, transformation of the South Wales NET Service included a change to a gastroenterology-led service model alongside education and forming working relationships with gastroenterologis...

Background: Transformation of the South Wales NET service in late 2017 introduced new specialised staff, gastroenterology-led clinics and MDTs with a particular emphasis on educating referring specialties on NETs. Data has shown patient experience, satisfaction rates, quality of life and gastrointestinal symptom scores have all improved. This study aims to describe findings from new NET service data for: referrals into the service, diagnosis times after symptoms, and initial s...

Endocrine-Related Cancer 2016 23 839–856. DOI: 10.1530/ERC-16-0359...

Endocrine-Related Cancer 2016 23 839–856. DOI: 10.1530/ERC-16-0359...